Lets see if tonight can be an "Anniversary Miracle" and I can complete a post before Johnny gets back from picking up the girls. Today was the second time we've been to a store, besides in Parowan, for a month. It was our 8th Anniversary today, although before all this, we had talked about really planning something fun for us to actually get away since we rarely do. But plans change & we were lucky we put away the guilt & left to at least go to dinner. Happy Anniversary hubby-Thanks for helping me & all of us get through this!

Went to Primary's again last Friday (May 20th). Avery had her port accessed to draw blood. To our surprise no Chemo today. They are giving her body a break before they decide the next month's treatment plan. Yeah for that! Also, this Friday was our last day for steroids for awhile, double yeah for that. After, we headed downstairs to the RTU for her bone marrow & lumbar puncture procedure. The bone marrow results will tell us how much of the cancer is gone & this will determine what risk category she'll be put in. The hope is the cancer is less then 5% in remission. The Doctor think she'll be standard risk & this is what we're praying for. Avery couldn't eat until after her procedures & this was a big problem due to her increased appetite at all times. We made it through the night with her wanting to eat twice, but the next day she just cried to eat. Her stomach was hurting from hunger & just the usual stomach pain. When she woke up from anesthesia she was ticked & I mean real ticked. This time I didn't warn the nurse & it was not good. She yelled a lot at them and said some not so nice things. I don't know if I should mention some of those words.... okay I will remembering the "Roids" make you a whole different person. (stupid,ugly & dumb) Once the nurse turned & walked away so she could laugh, so at least she took it good. I kept telling Avery, "okay that's enough", but she was so mad & thought they had hurt her stomach. I tried to explain they did nothing to her stomach, but had poked her back. The nurse said she understands, some wake up from anesthesia aggravated, besides her being on steroids & hungry. My phone battery was dead or I would have recorded it to at least find humor in it later. We headed home & after food & pain meds she started feeling a little better. One more week down. What a brave little girl!
Numbing her port before Clinic

Measuring her-
Cleaning her port before access.
All finished!

Hungry & drawing blood for more tests.

So hungry! Please hurry & put her to sleep.

So mad at the Doctors she called them, really the nurses. So, So Mad.