All of Avery's counts took a huge dive! We are currently at the ER still at 1:13 a.m. Got here at 7:00 for a blood transfusion I'll update when I can. One of the side effects of the chemo's we just finished are dropped counts 1 to 2 weeks after, well....they definitely dropped!
Update: It was definitely a long night at the ER. By the time we picked up baby and got home it was after 3 in the morning on Saturday Oct. 29th. It was a process to get the transfusion started, but we are so glad for those donors who donate it for times like this. They ran her counts again before the transfusion to see where they were (even though it had only been 2 hours since we got the last results back), then they have to prepare the blood. Avery is O positive, I'm writing that here because I always forget. Because she's immune compromised they have special blood to give her that they radiate (whatever that means). They only had one on hand at the hospital so they sent for another one to be delivered in case we needed another unit of blood. She got one unit of blood over 4 hours. Her oncology said to do it over 6 hours, but the hospital in Cedar says the longest they do transfusions is over 4 hours. The oncologist was good with that. Afterwards we ran counts again.
She's never been back into the ER (The time she had a fever someone from the infusion clinic was nice and came in just for us) since Feb. 27th the day I still remember so clearly that started all the worry and eventually lead to her being diagnosed with Leukemia. However, she still remembers having to drink a large amount of red stuff before having a cat-scan. First thing she wanted to know when we walk into one of the ER room's was, do I have to drink that red stuff again? I can't believe her memory.
When we finally got her to bed, she striped off her pajamas, throw her blankets on the floor that she had with her at the hospital and said, "Will you wash these for me"? These blankets/pj's had been at the hospital so she didn't want to touch them anymore until they were washed.
To back track what happened before we heading to the ER. So home health didn't come on Friday until after school @ 3:00. After about 2 hours I started making calls to get her lab results, it's faster then waiting for them to call. Her results were finished about 5:30 and when I seen all her numbers so low I know we were in trouble. They were the lowest they've ever been, even when she was first diagnosed. We've only seen an ANC of 100 the day she was admitted and the next day it went up.
Her results: Wk Before: Normal:
WBC: .5 * , 1.6 5.5-15.5
RBC: 1.79 2.91 3.90-5.30
HCT: 14.2 * 24.2 34-40
PLTS: 37 195 150-400
HGB: 5.1 8.2 11.5-13.5
ANC: 100 * 1500 1500-8500
Obviously all of them are low, but the * is values that are critical. I called the on-call oncologist to see what she wanted us to do. With her HCT and HGB that low she said she was surprised she even wanted to get out of bed. She had been tired, but didn't seem anymore tired then usual and had actually wanted to go with Johnny and Kelsi looking for deer so I could get a few hours of work in. I had no idea her counts were that low and she had went to school with an ANC of 100 that is super neutropenic.
When we left the hospital early yesterday morning her HCT went up to 23.8 (still border line) and HGB went up to 8. Home health came today to check her counts again. Her platelets dropped to 15, HCT went up to 25 and ANC went up to 500. The on-call oncologist is going to talk to her Doctor tomorrow and see what she wants to do. She may need another transfusion for platelets! With platelets that low it's scary if she did anything to start bleeding. Platelets clot your blood and 15 is super low! Bummer for Halloween! Stupid cancer-sorry not very nice, but right now that's how I feel! We'll have to see what tomorrow brings!
ON A HAPPIER NOTE:
For red ribbon week-say no to drugs last week they had a crazy hair day! This is what someone with no hair does! Becky did a great job! She was worried about what she would do with no hair and I know it's hard for her to face everyone with no hair, but she was thrilled with this.
Also on the same day Miss Iron County came to visit Avery! She was so excited! She brought all the kids a Halloween basket and gave Avery a pillow and blanket. That was so nice and thoughtful of her! She also went to visit the other cancer kids in Iron County. We're grateful she took time out of her busy schedule to come visit and put a smile on Avery's face! These kids deserve something to look forward to. They have to deal with so many scary things. She is having to grow up way too fast!
4 comments:
Scary scary counts so glad for stored blood, donors, doctors, nurses, hospitals, etc... Modern medicine ROCKS! Thanks Miss Iron County and everyone who helps in anyway, Parowan and Iron County ROCKS too. Also Thanks to the great people that Amber & Johnny work with. It can't be easy on them having missing employee's as it mean extra work for them, you ROCK too. Prayers for Avery!!
If I'm being thankful on this halloween fall day I also need to be thankful for the Parowan 4th ward for the meals they delivered and for anyone else who has helped with food, fund raisers, gifts, cards, laughs, cleaning, smiles, words of encouragement, hair fixes & styles and the list goes on!! Every big and small things is so very appreciated!! I thank you as does the Evans family!!! Prayers for Avery! love grandma
I look tired too and that picture was taken before midnight. I was surprised I could even stay awake till 3. I slept in pretty good the next morning. More then I bet you can say.
Tears, tears, and more tears. Reese told me about Avery's crazy hair and how awesome it was. I am glad that I got to see pictures. Avery you are so beautiful and don't you ever forget that. XOXOXO
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