Tuesday, May 29, 2012

Maintenance trip #6

Since Avery was diagnosed we were never admitted until maintenance. That seems crazy, because maintenance was suppose to be so much better. We are on too much chemo so we keep lowering it until her ANC goes higher.  We've had 3 hospital admits  for fevers and counts (ANC) under 500.

We had an appointment to see the bone doctor. Avery got x-rays of her knees, legs, ankles. The MRI was taken only from hips down and the damage was found in her upper legs. He said the x-rays looked good. He was hopeful that with her being so young that the blood vessels would start blood flow back to the bones in her legs. He also thinks we caught it early because the bone damage (osteoporosis) was not near the joints, knee or hip joints, which is a good thing. Then she got chemo in her port. Her ANC is 800 so it hasn't increased much, therefore we are still at 50% of oral chemo. She did so well.

Avery's feeling so good, probably the best she's felt yet. Still on 50% chemo and NO steroids so that's a big part of it. She had stomach pain for about 3 days only at night for a couple hours, nothing like we use to experience, but I still just hate to see her hurting. We leave tomorrow for an all week journey to Miss Utah when Avery is being a Little Miss to Miss Iron County, Crystal Cardon then on to Camp Hope! The little boy we took Christmas too (but who we never met) passed away Saturday night. It just breaks my heart. Another cancer mom made a video of him and took pictures for his mom. I know this will be something she can cherish always. It was good  to see the video to finally put a face with his name. He is no longer in pain, but I never want to know how hard (hard doesn't even begin to describe what it would feel like) that would be to lose one of your children. We know are trial is minor compared to so many others. Hugs your babies real tight!

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