Today:
Avery said, "Mom, do you know what hurts"?
Mom: No what hurts?
Avery: Nothing, Nothing hurts, that's what hurts.

Yay! For that, we love these days and hearing this! We have loved being off chemo, although we know she needs to get as much as her body can handle the next 15 months to lower her chances of this ever coming back so I've been anxious to get those counts up and start back up on her chemo pills. She has been off all chemo for two weeks. Being off the steroids (due to the bone damage) aka little devil pills makes a huge difference in our life and her pain level mood/hunger is so much different now. Without the steroids, it makes a 25 less pills a month difference. That's a huge change! Home Health came yesterday to see where her counts are. She missed the first time, but was good to re-insert without Avery noticing.  I've been wanting to try to access her port, but Avery says no way. I think she just wants me their to hold her hand while she squeezes mine. She doesn't want her mom giving her pokes. Their have been times at the doctors office that if I know how it would have came in real handy. Their was a time that primaries was going to teach Johnny & I because at first home health had so many misses in her port.

ANC: 600 (this hasn't changed since our last blood draw 9 days ago) I'll have to add the other counts later, don't have exact numbers right now.

Her oncologist decided to still get her back on her oral chemo. The dose will be at 50% which means: 1/2 pill 6MP Monday thru Friday, 1 pill 6MP Saturday & Sunday and on Thursday 6 pills of methodraxate. When we started maintenance she was on 12 pills then after her counts dropped so low for a month, we went to 9 pills, now 6 pills. We will see what this does for her numbers next week at our next appointment. We are ready to figure out where her right doses of chemo needs to be.