So Behind....

I'm posing even though I haven't finished this post....but it's 4:44 a.m. and I added another post from tonight so I'll come back to this later.


November 11th-Start of a new phase Interim Maintenance II

I feel so behind....life is crazy. I know for everyone they think they're too busy all of us for different reasons. I just feel like my brain is fried most days with things to remember and I just get overwhelmed with all the things I can't seem to get done and the further I get behind updating this blog the longer I let it go. So.... lets play catchup. An awesome organization called Hope Kids which Avery and our family is a part of puts together a lot of special free events for these "hope" kids. There motto is restoring hope and transforming lives. We were so happy it finally worked out we could go to our first Hope Kids event to Disney on Ice. The Jense family already had tickets. We had awesome seats third row from the bottom. The girls absolutely loved it. When you have had to watch your daughter go through so many hard things that make her so unhappy, the joy of being able to see her face light up with happiness is indescribable. It makes me happy just seeing both of them happy.  They both deserve some happy times! They were in awe at all the Disney character, lion king, mickey, goofy, Donald duck, peter pan, tinker bell, snow white, little mermaid just to name a few.

After some fun, the next morning another trip to the hospital. My mom drove to Salt Lake with us this trip and she stayed with the kids while Rachelle came with me and Avery to the hospital. We had another LP which she had a hard time waking up from and she wakes up aggravated and cries to go home. We still had to go back upstairs for her chemo's. Next LP in 31 days, (if she makes counts every time) we are going to try the lighter sedation method they do across the hall from clinic. I think this may be a better option for us. We. Sure. Hope! As Avery walked by my computer tonight she turned away when she seen these pictures at the hospital. She said I don't like to look at any pictures of the hospital. She associates everything that goes with her to the hospital as bad. We tried to take our own water with us for her to drink, but she believes it also is contaminated like all the other snacks they have there.

Soon after I took this cute picture, Rachelle looked at the time on her phone and it said 11:11 and this day was the 11th month of the 11the day of the 11th year. Now that is a lot of 11's. (My camera was messed up and said the 10th, but it really was Nov. 11th) Thanks Rachelle for being part of this journey and coming to the hospital with us!

The child life coach downstairs at the RTU helped keep Avery's mind off of the LP and made some crafts with her. Those glasses are just a little bit too small:)

And again some fun....2nd hope kids event at the movie, Puss and boots plus free popcorn and drinks for the kids. Thanks again Hope Kids for making these kids smile!

We left Salt Lake after the movie on Nov. 12th, which is Johnny's 33rd birthday. Avery of course made plans all the way home, planning for her dad's birthday bash. We didn't get home until 4:00. We hurried and made a cake, blow up balloons with money in them and made a treasure hunt with the balloons. All Avery's idea. She loves to celebrate birthdays!

At the ER, Kyle always shows up to cheer us up!  Avery had been fevering and had thrown up this day. In the evening her fever went up high enough that we had to take her to the ER. Our happy face!

Our sad face

We love this little one! He's a chub-ber and at 3 months weighs 16 lbs 12 oz. He is a lot of work and my most fussy baby, but so stinkin cute!

She wore her clip on hair with wild colors. She teased the nurses and said look how fast my hair grow! They totally believed us. Okay Okay Just teasing they didn't really believe, but she did look darn cute.

This look so reminds me of Avery's cousin Kayden's look!

Yay! We went to the