Since I last wrote a few hours ago, she now has a fever between 99 to 100.3. It is getting so close to the point we may need to go to the hospital. I don't know what is causing the fever especially since she is on a high dose of antibiotic every 8 hours. We are continually checking. We are hoping/praying this goes away and fast.
Her fever rose 101 to 103 range which is super high- super concerning. The magic number for us is 100.4 and then we start making calls to the on-call oncologist. We can't give tylenol or ibuprofen because it will mask a fever and we need to figure out what infection her body is trying to fight off. She knows when we are checking her temperature all day what may happen. We headed to the ER, which was super busy. She's so neutropenic (little immune system) that she stayed in the car until a room was ready. Then just the usual..CBC, blood culture, they started us on two new antibiotic's called gentamicin and zosyn. Which currently, at the hospital she is receiving again through her port. They did a chest x-ray, tested for RSV, strep throat and other viruses. No results yet. ANC surprisingly came back at 500, however today it's down to 100. They think last night was not an accurate reading. We will most likely be staying the night again.
We did stay a second night and was able to come home today.So far she didn't test positive on any of the test. Another unknown reason for fever. Her ANC is now at 300. So improving. We give her antibiotic's every 8 hours through her port and head to Primaries in a few days for another appointment.
And I thought this whole maintenance thing was suppose to be a little easier and let us feel a little bit of normalcy for her and us. So far, not so!
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