One of my big worries was if Avery was to get a high enough fever we would have to take her to the ER. We have been lucky compared to a lot of other kids that have made frequent trips to the ER with fevers, but I just dreaded & hoped that this day would never come. My bigger worry was once I had the baby being torn if Avery were to get a high fever and need to go to the ER and be admitted and a newborn that needs their mother too. I never want to have to feel torn between kids that need me, although realistically I knew when the baby came it was going to get even harder making our frequent trips to Salt Lake. On Sunday at 3:00 a.m. Avery started with an ear ache. She said it was hurting so bad. At 6:45 a.m. I called the on-call pediatrician who said she would meet us at 8:30 a.m. at her office to see her. I stayed home with the other two kids while Johnny ran her down. We got a prescription for ear drops & an antibiotic for an ear infection. She feel asleep for a few hours, but her fever was running 99 to 100 degrees. (The magic number is 100.4 and they want us to wait a half hour then check it again, if still high then we are suppose to take her to the ER) When she woke up around 12:00 she still cried how bad it hurt and had thrown up after we gave her medicine. Probably because she wouldn't eat or drink. My Dad & brother Shane came and gave her a priesthood blessing that she could endure the pain and this trial would pass shortly. She feel asleep. Her fever was still border line to take her to the ER. Johnny & I ran down to Cedar for the baby who needed another prick of the heel to see what his jaundice count was. When we got back around 4:00 her fever was still high ranging from 100.4 and reaching 101.6 depending on the thermometer. I started making phone calls. I talked to the on-call pediatrician again, I needed to call to check on Carson counts too, (they went up higher to 14) I asked her if there was a way to not go to the ER, but if the infusion clinic or home health could access her port to draw blood and do the CBC. This would be easier on her and less dramatic. She made calls to the infusion clinic & I made calls to home health. We ended up taking her to the ER where we got registered, then gratefully someone from the infusion clinic was willing to come in and access her to draw blood. They also have on hand the antibiotic that she needs when she gets a fever. They easily accessed her port and gave her an antibiotic called Rocephin to help her body fight off the infection, this takes 30 minutes to drip in her port. We waited for her blood counts to come back. If her ANC was under 500 then we would have to be admitted to the hospital. Avery didn't feel good and just wanted to go home. So did we. Surprisingly her ANC came back at 5100, which is the highest it's ever been and her WBC was 6.2 the highest it's ever been. This means her body is doing exactly what it's suppose to do and her bone marrow is making new white blood cells to fight off the infection. Good news we didn't have to stay. She hardly ate or drink all day and still didn't feel good, but we hoped with the antibiotic they gave her she would do a lot better. The next day she felt so much better. We are so grateful to the on-call Dr. who was so willing to help us. Three trips to Cedar in one day that may be a record, but we are so glad she's doing better and mom didn't have to worry about not being with her if we had to stay at the hospital.
At the infusion clinic drawing her blood.
She's so thrilled to be here.
The 30 minute drip of Rocephin.
Carson made his first visit to the infusion clinic & sleep the whole time.
Today was my first time NOT going to Salt Lake with Avery. Johnny took her at 7:30 this morning. I was grateful that Avery wasn't sad that I wasn't going and a little relieved to be having a week off without the long drive. She know I needed to stay home this time with the baby. I surprised myself and after they left, it broke my heart that I couldn't be there for her, but I know she's in good hands. So glad that Johnny is able to take her and Avery has all the confidence in the world for her dad. Thinking of them and hoping again her little body can endure all the chemo they put into her! You are so brave Avery!
8 comments:
Glad Avery had a good time with her dad at the hospital. Hoping she will feel like eating again soon and that her upset stomach etc. pass too. She seems to be handling her chemo thus far pretty good. Sorry she feels a little under the weather.
I think it's funny that I check this everyday, when I think I pretty much know whats going on? Avery is one tough Chick and her Mom is pretty tough herself. In more way then one. I think I got beaten up by her a time or two growing up. :)
Beaten up please and if you did ....you know you probably deserved it right:)
Oh and that first picture of Avery look like Kaden or Johnny. I think they have both given me that exact look.
Hi Amber, I am so glad you are keeping me updated with your blog. Your little family is so cute and I think little brother might look like Kelsi. I am happy your delivery went well and Avery is feeling ok. xoxo DL
Today made me laugh. I loved coming over there for lunch and having her tell me all about her favorite show Victoria and watch her sing along with it. I love to watch her try to sing along but doesn't know all the words. Whether it is a Victoria song, Taylor Swift, or Diana Rose. You really need to video it. I think everyone needs to see it. :) I love when she seems to be having a good day.
I'm ready for another update. You act like you have too much going on in your life. Guess I might have to take you up on your offer and being a guest blogger. :) I think its funny that I check this everyday, when I really know pretty much what is going on.
(UPDATE FOR KYLE 8/23/11 FROM AMBER'S FACEBOOK)
Back from a long day at Primary Children's: Rough day for Avery...stomach pain, mouth sores, more chemo through her port, put asleep for chemo in her spine, threw up, cried to just go home, won't eat or drink much. Kiss your little ones and be grateful they don't have to go through all this & you don't have to watch. So sad seeing just how many tough kids are fighting their own battle. So grateful for family.... for my sis for taking my 2 week old & my mom my 2 year old! They decreased her chemo because of sores not increased it. Avery feeling A little better and attended her first day of school program!! Kelsi turned 2 yrs 8/13/11 and baby is doing good!! Amber running like a chicken with her head cut off and Johnny picking up any slack!! lOVE, MOM
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